Life experiences of young mothers of preschool aged children with Down syndrome were explored in this qualitative narrative study. Intensive interviews of four purposefully chosen young women were conducted. The findings of this study illustrate the impact of a preschool aged child with Down syndrome on the life of a young woman.
A variety of themes were identified. The primary themes were the background of the woman, including her public school experience, learning of the diagnosis of Down syndrome, supports, the child's medical complications, learning to cope and the impact of that disability on their day-to-day lives.
Child care and career were both impacted by the fact of the child's Down syndrome. Medical complications and behavior strongly affected day to day life. None of the participants recall positive inclusion experiences with other students with disabilities. The participants told of confronting bias in their immediate social circles and local communities. They also mentioned gathering support, and beginning to grow into advocates for their children. Expert knowledge and law are different from actual practices and widespread beliefs about the value of persons with disabilities in our society.
The shared experiences provide insights into what it really is like to be a young mother of a child with Down syndrome. Suggestions for future research and lessons learned by the researcher were presented.
|Advisor:||Alwell, Morgen, McGregor, Gail|
|Commitee:||Evans, Roberta, Koester, Lynne, Lubansky, Kathleen|
|School:||University of Montana|
|Department:||Curriculum & Instruction|
|School Location:||United States -- Montana|
|Source:||DAI-A 72/09, Dissertation Abstracts International|
|Subjects:||Womens studies, Early childhood education, Special education, Developmental psychology, Individual & family studies|
|Keywords:||Down syndrome, Early childhood education, Mothers, Parents, Qualitative|
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