Amyotrophic Lateral Sclerosis (ALS) is a complex terminal diagnosis that carries an enormous burden for the patient and their caregiver. This qualitative study examined the strengths, challenges, and quality of life of ALS caregivers. Fifteen caregivers for someone who has been diagnosed with ALS and is living in the home participated in this study. Topics that were explored included the role of the caregiver, experiences with community based resources, support systems, strengths and challenges, living arrangements, end-of-life decision making, and recommendations to service providers. The results facilitate the understanding of the lives, experiences of services, and suggestions for service change among people who are affected by an ALS diagnosis. The implications of this study assist social workers and other health care professionals in designing programs, policies, and interventions that act to better reach the needs of caregivers who are supporting someone that has been diagnosed with ALS through the progression of the disease process.
|School:||California State University, Long Beach|
|School Location:||United States -- California|
|Source:||MAI 49/01M, Masters Abstracts International|
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