Many adults with developmental disabilities (DD) have difficulty with transitions, thus the absence of permanency planning for these adults can adversely affect their well-being and support. This qualitative study examined challenges to permanency planning by parents caring for adult children age 45 or older with DD. Fifteen parents of Regional Center of Orange Country consumers participated in this study to explore the extent of planning conducted including any challenges they face in making these plans. Findings showed that while some parents have taken steps to provide for the future of their child, many still have not. Many parents expect their non-disabled children to provide for their DD siblings when parents are no longer able. Additionally, many parents have not adequately communicated the care needs of the adult with DD to other family members. Implications for care planning by regional center administrators and direct social work practice DD families are discussed.
|School:||California State University, Long Beach|
|School Location:||United States -- California|
|Source:||MAI 47/05M, Masters Abstracts International|
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