The purpose of the research presented here is to identify the challenges faced by young people with sickle cell disease, the primary concerns of the young adults related to the transition from pediatric care to adult care, and the transition-related services needed in Los Angeles County. To date, research regarding the needs of these young adults has focused on the opinions of their healthcare providers with little emphasis on the disease experiences and needs from the perspective of the young adults.
In-depth interviews with 20 young adults with sickle cell disease in Los Angeles County revealed compelling descriptions of how sickle cell disease affects life's domains such as school, work, relationships, the transition to adult-centered care and expectations for the future. Based on results of these interviews and research into transition programs for young adults with other chronic conditions, suggestions for the creation of a sickle cell disease transition program are made.
|School:||California State University, Long Beach|
|School Location:||United States -- California|
|Source:||MAI 48/02M, Masters Abstracts International|
|Subjects:||Forensic anthropology, Health care management|
Copyright in each Dissertation and Thesis is retained by the author. All Rights Reserved
The supplemental file or files you are about to download were provided to ProQuest by the author as part of a
dissertation or thesis. The supplemental files are provided "AS IS" without warranty. ProQuest is not responsible for the
content, format or impact on the supplemental file(s) on our system. in some cases, the file type may be unknown or
may be a .exe file. We recommend caution as you open such files.
Copyright of the original materials contained in the supplemental file is retained by the author and your access to the
supplemental files is subject to the ProQuest Terms and Conditions of use.
Depending on the size of the file(s) you are downloading, the system may take some time to download them. Please be