The purpose of the direct descriptive phenomenological study was to identify the common lived experiences and needs of family caregivers, who without formal caregiver education or training, cared for terminally ill loved ones in the home, who received 30 or fewer days of hospice benefits, or no hospice benefits. Participants were a convenience sample (N = 4) of participants residing in Southeastern Wisconsin. The following broad themes emerged from the data: (a) background information sharing, (b) role-defining behavior, (c) activities of caregiving, (d) managing support, and (e) effects of caregiving. Giving voice to the participants illustrated that although caregivers shared positive experiences, the healthcare system fell short in many areas, including poor accessibility to information and available resources.
|Commitee:||Holmes, Suzanne, Miller, Kathryn|
|Department:||School of Human Services|
|School Location:||United States -- Minnesota|
|Source:||DAI-B 70/05, Dissertation Abstracts International|
|Subjects:||Mental health, Nursing|
|Keywords:||Caregiving, End-of-life care, Family caregivers, Hospice care, Phenomenology, Terminal illnesses|
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