Dissertation/Thesis Abstract

The experience of family caregiving of the terminally ill: A phenomenological study
by Gill, Gretchen J., Ph.D., Capella University, 2009, 202; 3358694
Abstract (Summary)

The purpose of the direct descriptive phenomenological study was to identify the common lived experiences and needs of family caregivers, who without formal caregiver education or training, cared for terminally ill loved ones in the home, who received 30 or fewer days of hospice benefits, or no hospice benefits. Participants were a convenience sample (N = 4) of participants residing in Southeastern Wisconsin. The following broad themes emerged from the data: (a) background information sharing, (b) role-defining behavior, (c) activities of caregiving, (d) managing support, and (e) effects of caregiving. Giving voice to the participants illustrated that although caregivers shared positive experiences, the healthcare system fell short in many areas, including poor accessibility to information and available resources.

Indexing (document details)
Advisor: Moore, Julia
Commitee: Holmes, Suzanne, Miller, Kathryn
School: Capella University
Department: School of Human Services
School Location: United States -- Minnesota
Source: DAI-B 70/05, Dissertation Abstracts International
Subjects: Mental health, Nursing
Keywords: Caregiving, End-of-life care, Family caregivers, Hospice care, Phenomenology, Terminal illnesses
Publication Number: 3358694
ISBN: 978-1-109-17301-7
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