Parents and guardians of children who inherited sickle cell disease have experienced psychological stress, financial difficulties, an uncaring attitude, poor access to and uneven quality of treatment. Descriptive quantitative research was used to examine the attitudes and perceptions of parents and guardians of children with sickle cell disease toward the healthcare treatment of their children in the Atlanta, Georgia. No research on attitude and perception of parents/guardians existed about sickle cell healthcare treatment in Atlanta, Georgia in the current literature. A random convenience sample of 150 members from The Sickle Cell Foundation of Atlanta, GA participated in the survey that used a 21-item instrument entitled Public Attitude to Disability Survey (PADS). Chi-Square and Mann-Whitney U were used to test the statistical significance of dependent variables of parents' or guardians' attitudes toward cost, access, and quality of care provided for the treatment of their children's sickle cell disease. Findings from the study showed that female parents/guardians' ratings were statistically significant for costs, quality, and access in rank order, but costs showed more statistical significance compared with access that was the least significant as compared with male parents/guardians of sickle cell children. Parents/guardians of sickle cell children with insurance indicated statistically significant ratings with quality, costs, and access in rank order; however, quality was most statistically significant compared with access that was least significant compared with parents/guardians of sickle cell children without health insurance. The information gleaned from the study would improve consumer awareness about sickle cell disease treatment, thereby enhancing consumer empowerment and quality of life for sickle cell disease patients.
|Commitee:||Gonzales, Dana, Oomen, Jody|
|Department:||School of Human Services|
|School Location:||United States -- Minnesota|
|Source:||DAI-B 68/12, Dissertation Abstracts International|
|Subjects:||Health care management|
|Keywords:||Children, Health care treatment, Sickle cell disease|
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