Korsakoff’s syndrome (KS) is a debilitating psychoneurological disorder that can occur in adults with alcohol use disorder (AUD). People with KS experience a sudden onset of symptoms that include confabulation, anterograde and retrograde amnesias, apathy, issues with vision and gait, and lack of insight into their condition. The adult child of the parent with alcohol-induced KS may need to take on the role of caregiver, regardless of the status of the relationship with their parent. While there is a rich literature base in the areas of adult children of parents with AUD and caregiving, there are no studies that have explored the experiences of adult children caring for a parent with alcohol-induced Korsakoff’s syndrome. Eight adult children caring for a parent with alcohol-induced KS in the United States participated in this generic qualitative study. Inductive analysis was used to examine the data. Five themes emerged: addiction and the adult child, experiencing caregiver burden, experiencing a variety of emotions, professional healthcare experiences, and observations of symptoms. These themes emerged over seven anchor events in their caregiving experiences: interactions with their parent pre-diagnosis, parent’s medical emergency, hospitalization, diagnosis, housing, legal, and financial. The results provide a foundation for future research in the areas of KS, caregiving, and adult children of parents with AUD. They also provide a basis to inform the development of interventions with this population and demonstrate a need for more awareness of KS among healthcare professionals.
|Advisor:||Doogan, Mike, Piotrowski, Nancy|
|Commitee:||Ofei-DoDoo, Samuel, Turner, Daniel|
|Department:||School of Social and Behavioral Sciences|
|School Location:||United States -- Minnesota|
|Source:||DAI-B 82/7(E), Dissertation Abstracts International|
|Subjects:||Psychology, Mental health|
|Keywords:||Adult child, Alcohol use disorder, Caregiver, Family, Korsakoff's syndrome|
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