It is important to understand parent perspectives regarding their infant’s surgical intervention. This study seeks to find out more about how family centered care and individually tailored interventions for parents can support coping and resiliency. The parental interviews conducted in this study have the power to assist in the understanding of parental coping and examine how professionals can provide support to parents during hospital stays and prepare them to transition care home. The qualitative interviews explore how parents partake in their infant’s care in the Neonate Intensive Care Unit [NICU] and in outpatient surgery, how parents were prepared for the transition home with a medically fragile infant, and how the infant surgical intervention impacted parenting over time. This unique approach to examine how parents cope with having a hospitalized infant and raising them following hospitalization can highlight the need for proper parental resources and support systems. The findings of this study show how the stress of an infant’s diagnosis and surgical intervention continue to impact parent coping and adaptation over time and shed light on what parent’s found supportive in their coping during their time in the hospital and as their children grew up. These findings support family-centered, trusting relationships between families and medical staff and can influence how medical professionals approach parents and offer appropriate resources for both the medically fragile infant and parents.
|Commitee:||Driscoll, Priya, Oparah, Chinyere, Perez, Linda|
|School Location:||United States -- California|
|Source:||MAI 58/06M(E), Masters Abstracts International|
|Subjects:||Medical Ethics, Early childhood education, Developmental psychology|
|Keywords:||Child life, Coping, Family centered care, Infants, Parents, Stress|
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