Dissertation/Thesis Abstract

A Narrative Inquiry on Culturally Competent Dementia Care
by Oya, Kumi, Ph.D., California Institute of Integral Studies, 2018, 118; 10814538
Abstract (Summary)

This narrative research offers an inquiry that intends to inspire thinking about a culturally competent dementia care framework in the United States. The main research question is: How does a culture hold dementia care? A subquestion is: What can we in the United States learn from other cultures about dementia care to enhance this care for all? The inquiry was designed to conduct narrative research focusing on Japanese culture in the context of caregiving to people with dementia; 4 professional and 4 family caregivers from this culture, who have cared or have been caring for persons with dementia, were interviewed. The narratives reflected the caregivers' lived experiences and how they were culturally compelled to give and sustain care.

This inquiry assumes that a person-centered dementia care model is challenging for the U.S. healthcare system, despite attempts to do so, due to the prevailing values and beliefs in the United States that center around a cure model as opposed to a care model. It also assumes that ideal person-centered dementia care in the United States needs to pay close attention to the cultural competence of caregivers and healthcare professionals, as their clients identify as persons through their cultural ways of being. These assumptions are grounded in the literature review.

As a result of narrative data analysis, 5 themes emerged from the data among family caregivers, and 2 themes among professional caregivers as the commonality. In addition, 4 themes emerged not as common themes but as unique themes. This dissertation examined Japanese interdependent construal of the self and demonstrated that these themes could be explained through understanding Japanese sense of self.

It is evident that interdependence between the self and others is deeply embedded in Japanese culture. Without a doubt, interdependence uniquely manifests in the caregivers’ attitudes, values and worldviews of caregiving in Japanese culture. Although the limited number of participants should be considered, these findings/caregivers’ insights generated from this study aim to promote and encourage dialogues regarding what culturally competent dementia care looks like among caregivers and beyond in the United States when taking care of people from different cultures.

Indexing (document details)
Advisor: Gozawa, Joanne
Commitee: Fahim, Urusa, Iwasaki, Teruko
School: California Institute of Integral Studies
Department: Transformative Studies
School Location: United States -- California
Source: DAI-A 79/10(E), Dissertation Abstracts International
Source Type: DISSERTATION
Subjects: Cultural anthropology, Gerontology, Nursing
Keywords: Cultural competence, Dementia, Interdependence, Person-centered dementia care
Publication Number: 10814538
ISBN: 9780355991956
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