Informal caregiving has been a widely-studied topic recently because many people with chronic and terminal illnesses are being cared for by family and friends in their homes. However, little research has focused on informal caregivers for those with one condition, frontotemporal dementia (FTD). The purpose of this study was to understand how the changed behavior of someone with FTD affects persons caring for those with this type of dementia, with a specific focus on the stress level of informal caregivers. Eleven caregivers participated in this study, with an age range of 42 to 81 years.
Caregivers whose care recipients are institutionalized reported a higher stress level during time of diagnosis, than that of caregivers who cared for their family member at home. Qualitative responses indicated that a lack of knowledge about FTD can result in a misdiagnosis, leaving caregivers more stressed because the care recipients’ behavior is left untreated.
|Commitee:||Goeller, Casey, Weber, Christine|
|School:||California State University, Long Beach|
|Department:||Family and Consumer Sciences|
|School Location:||United States -- California|
|Source:||MAI 57/01M(E), Masters Abstracts International|
|Keywords:||Dementia, Frontotemporal dementia, Informal caregivers|
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