Dissertation/Thesis Abstract

Retrospective evaluation of a health promotion program designed to improve quality of life amongst youth with cystic fibrosis: Mauli Ola Foundation
by Schroeder, Cassandra L., M.P.H., California State University, Long Beach, 2016, 63; 10108175
Abstract (Summary)

Alternative saline therapies are one way to provide supplemental treatment to patients with Cystic Fibrosis (CF); surfing represents one form of therapy that may increase health-related quality of life (HRQoL). To date, however, many assumptions about surfing’s effectiveness are based only on trials with hypertonic saline solution (extra salty sterile water), thus warranting the need to test effectiveness with a group of CF patients who use surfing as part of their treatment. The purpose of this study was to evaluate the impact of Surf Experience Days (SEDs) on the HRQoL of participating youth; the secondary goal was to assess the presence of a dose-response relationship. Findings suggest indicators of HRQoL amongst youth with CF improved due to participation in the Mauli Ola Foundation (MOF) SED’s. Greater frequency of participation in MOF SED’s was not associated with greater improvements in HRQoL. Future studies with larger samples and additional measures are recommended

Indexing (document details)
Advisor: Bavarian, Niloofar
Commitee: Forouzesh, Mohammed, Nguyen-Rodriguez, Selena
School: California State University, Long Beach
Department: Health Science
School Location: United States -- California
Source: MAI 55/04M(E), Masters Abstracts International
Source Type: DISSERTATION
Subjects: Mental health, Alternative Medicine, Health education
Keywords: Cystic fibrosis, Mauli ola foundation, Quality of life, Surfing, Youth
Publication Number: 10108175
ISBN: 9781339715384
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