This action research study was undertaken to identify how African Americans perceived and understood the many facets of hospice care, and to identify any barriers they faced in dealing with end-of-life care, any problems they encountered with enrollment in hospice care, and how they utilized hospice services. Qualitative interviews conducted with 10 African American participants resulted in the identification of eight major themes related to end-of-life care. Results indicated that African Americans perceived and understood hospice care through a religious or spiritual lens, and believed that hospice permitted them to continue to be the primary caregivers of their terminally ill. These are two of the identified themes. Results also indicated several cultural, institutional, familial, and individual barriers. These included a lack of pastoral or local church referral to hospice care, family awareness of hospice services, revocation or discharge from hospice care, historic mistrust of the healthcare system, pain management, and prior knowledge and experience of hospice care by the participant. Interventions included family conferencing with fictive kin and friends of the participants about hospice philosophy and services, aggressive outreach to African American pastors and allowing their involvement in the decision-making process, seminars were conducted in African American churches concerning the scope and benefits of hospice services, radio advertisements targeted African American communities on the use of hospice care, and two funeral homes provided preplanning advice to African American churches on funeral arrangements, advanced directives, end-of-life documents, and financial matters.
|Department:||School of Public Service Leadership|
|School Location:||United States -- Minnesota|
|Source:||DAI-A 77/04(E), Dissertation Abstracts International|
|Subjects:||African American Studies, Social work, Social structure|
|Keywords:||African Americans, End-of-life care, Ethnograhy, Hospice care, Palliative care|
Copyright in each Dissertation and Thesis is retained by the author. All Rights Reserved
The supplemental file or files you are about to download were provided to ProQuest by the author as part of a
dissertation or thesis. The supplemental files are provided "AS IS" without warranty. ProQuest is not responsible for the
content, format or impact on the supplemental file(s) on our system. in some cases, the file type may be unknown or
may be a .exe file. We recommend caution as you open such files.
Copyright of the original materials contained in the supplemental file is retained by the author and your access to the
supplemental files is subject to the ProQuest Terms and Conditions of use.
Depending on the size of the file(s) you are downloading, the system may take some time to download them. Please be