Purpose: The purposes of this study were to: a) explore the patient's perception regarding the family's response to the diagnosis of Type 2 diabetes mellitus (T2DM), b) examine the patient's reaction to these perceptions and how it has affected the management of the disease, and c) identify and explore individual needs for emotional and educational support following diagnosis of T2DM.
Background: Among the 212,953 Arkansans diagnosed with diabetes, 202,306 (95%) have T2DM (ADH, 2010; CDC, 2011). Management of T2DM includes increased physical activity, nutrition therapy, smoking cessation, and medication adherence (ADA, 2013) and patient education to address coping, and problem-solving for high or low blood sugar and risk management needs (AADE, 2011).
Methods: Individual interviews explored patient perceptions in this qualitative interpretive phenomenological study. Recruitment of adults diagnosed with T2DM at a rural clinic occurred over five months using purposive sampling. Content analysis and constant comparison facilitated exploration of lived experiences that patients reported about their families' responses to the diagnosis of diabetes.
Results: Fourteen participants (7 males and 7 females, mean age 53.2), who had been diagnosed with T2DM and had family members living in their home, completed data collection. Participants described six categories of family responses to the disclosure of diagnosis by the patient: supportive, challenged, scolding, worried, sabotaging, and panicked. Participants also offered suggestions about timing, action, tools, education, and individualization of care for providers who are working with newly diagnosed patients.
Conclusions: Perceptions about diabetes and about the response of the family to their diagnosis affected the participants in this study. Providers can help patients by giving them more education and training in order to help them to understand the management of diabetes and how their family can support them in this journey. This study was the initial step in a program of research to improve health outcomes for patients with T2DM through a more informed, positive and supportive family environment. The next step will entail development of a tool and healthcare provider interventions to assist newly diagnosed patients disclose their diagnosis and educate their family members.
|Advisor:||Goodwin, Julia A.|
|Commitee:||Barone, Claudia, Hartwig, Mary, Price, Robert, Schmidt, Cheryl|
|School:||University of Arkansas for Medical Sciences|
|School Location:||United States -- Arkansas|
|Source:||DAI-B 75/09(E), Dissertation Abstracts International|
|Subjects:||Nursing, Individual & family studies, Health care management|
|Keywords:||Phenomenology, Qualitative phenomenological study, Type 2 diabetes|
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