Dissertation/Thesis Abstract

The lived experiences of transition to adult healthcare in young adults with cerebral palsy
by Carroll, Ellen McLaughlin, Ph.D., City University of New York, 2013, 132; 3601861
Abstract (Summary)

Background: Health Care Transition (HCT) describes the purposeful, planned movement of adolescents from child to adult-orientated care. The purpose of this phenomenological study is to uncover the meaning of transition to adult centered care as experienced by Young Adults with Cerebral Palsy (YA-CP) through the research question: What are the lived experiences of young adults with cerebral palsy transitioning from pediatric to adult healthcare? Method: 6 females and 3 males, aged 19 -25 years of age, who identified as carrying the diagnosis of cerebral palsy without cognitive impairment were interviewed. Giorgi's (1985) method for analysis of phenomenology was the framework for the study and guided the phenomenological reduction. Results: The lived experiences of YA-CPs transition to adult health care, expressed from the data is expert novices with evidence and experience based expectations, negotiating new systems (effective/ineffective) interdependently (parents and provider support) accepting less than was expected. Conclusions: More information and support is needed for the YA-CP during transition to ensure a well-organized move to appropriate adult-oriented health care that is considerate of the lifelong impact of the disorder. Nursing's role as advocate, mentor and guide can optimize the individual's response to the transition process.

Indexing (document details)
Advisor: Roye, Carol, Frederickson, Keville
Commitee: Ebenstein, William, Roye, David, Todaro-Franceschi, Vidette
School: City University of New York
Department: Nursing Studies
School Location: United States -- New York
Source: DAI-B 75/02(E), Dissertation Abstracts International
Subjects: Medicine, Nursing, Health care management
Keywords: Giorgi's method, Health care transition (hct), Lived experience, Qualitative, Young adult with cerebral palsy (ya-cp)
Publication Number: 3601861
ISBN: 9781303535826
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