The purpose of this study was to conduct a secondary analysis and examine the reliability and validity, as well as the clinical significance of measuring perceived health status using the Kansas City Cardiomyopathy Questionnaire (KCCQ) and the adapted version of the KCCQ (KCCQ-SO) for the family caregiver/significant other (FC/SO) in a sample of patients hospitalized for decompensating heart failure (HF) and their identified FC/SO. Findings from other studies suggest that patient perceived health status predicts mortality, hospitalizations, and is associated with depression, but patient health status as perceived by the FC/SO had not been examined. A conceptual framework for understanding multiple proxy perspectives when evaluating health-related quality of life was adapted for this study.
Data collected from a sample of 144 dyads in a parent study was used for analysis. Psychometric analysis was performed on both the KCCQ and KCCQ-SO measures. Both the KCCQ and KCCQ-SO had final factor solutions with six factors. Internal consistency for both the KCCQ and KCCQ-SO was good (> 0.70), demonstrating good reliability of the internal structure of the measures. Patient and FC/SO perspectives of patient health status were significantly correlated and positively related.
Poor patient health status as perceived by both the patient and the FC/SO was also significantly associated with patient depression. This is an especially important finding, since patient depression has been shown in other studies to be related to higher patient mortality. However, patient perceived health status was not found to be related to illness severity or to predict re-hospitalization as hypothesized.
It was concluded from this study that the KCCQ-SO is a reliable and valid proxy measure of patient health status for hospitalized HF patients. Eliciting the FC/SO perspective can be valuable to both researchers and clinicians, especially when the patient is unable or unwilling to provide information.
|Advisor:||Quinn, Jill R.|
|Commitee:||Chen, Din, Chen, Leway|
|School:||University of Rochester|
|Department:||School of Nursing|
|School Location:||United States -- New York|
|Source:||DAI-B 73/09(E), Dissertation Abstracts International|
|Keywords:||Caregivers, Depression, Health status, Heart failure, Hospitalization, Illness severity|
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